Skip to content
Home » pennsylvania


Rare Disease Day ribbon and multi-colored backdrop design of adult and child figures holding hands

You Want People’s Attention? Then Make It Personal

    Lesa and Brennan Brackbill’s daughter was born in 2014 with a rare and often fatal disease that’s treatable if caught early through newborn screening. But there was no screening for it in their home state. So, the little girl’s health deteriorated, and they tragically lost her before her second birthday.